Journal article

A community-based co-designed genetic health service model for Aboriginal Australians

Imogen Elsum, Libby Massey, Callum McEwan, Desiree LaGrappe, Emma Kowal, Ravi Savarirayan, Gareth Baynam, Misty Jenkins, Gail Garvey, Margaret Kelaher



BACKGROUND: Aboriginal and Torres Strait Islander people experience a greater burden of disease and die younger than non-Indigenous Australians, with Aboriginal people living in remote areas of the Northern Territory of Australia having the lowest life expectancy estimates. Despite a high burden of chronic disease among Aboriginal and Torres Strait Islander people, access to specialist health services remains low and models of care that increase engagement, may improve health outcomes. METHODS: We describe client and staff perspectives of a model of clinical genetics services provided by the MJD Foundation (MJDF) in geographically and culturally complex contexts within the Northern Territory..

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Awarded by Lowitja Institute

Awarded by National Health and Medical Research Council (NHMRC)

Funding Acknowledgements

This study was funded by the Lowitja Institute (Project Code: 1364) and the National Health and Medical Research Council (NHMRC ID: 1114437). Authors EK, GB, GG and MK are CIs on both grants, as RS is CI on the NHMRC grant only. The funders had no role in study design, data collection and analysis, decision to publish or preparation of the manuscript.