Journal article

Factors influencing medical practitioner participation in population carrier screening for cystic fibrosis

Giulia M Valente, David J Amor, Liane J Ioannou, Alison D Archibald

Australian and New Zealand Journal of Obstetrics and Gynaecology | WILEY | Published : 2020


BACKGROUND: Cystic fibrosis (CF) carrier screening should be offered to people planning a pregnancy or in early pregnancy, according to current recommendations. However, research indicates rates of offering CF carrier screening are low. Health professionals (HPs) play an important role in offering population carrier screening. AIMS: To determine the opinions, knowledge and practice patterns of HPs with regard to the routine offering of population carrier screening for CF. MATERIALS AND METHODS: Five key informant interviews informed the development of an online questionnaire which was distributed to a select group of HPs involved in prenatal care in Victoria, Australia. RESULTS: Of the parti..

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Funding Acknowledgements

We thank the Cystic Fibrosis Community Care team members for their input into the project and Leo Bonacquisto for assistance with recruitment of participants. This study was supported by the Victorian Government's Operational Infrastructure Support Program.