Thesis / Dissertation

Coming of age with Li-Fraumeni syndrome: perspectives of young people and health professionals

Rowan Forbes Shepherd, Laura Forrest (ed.)

Published : 2020

Abstract

This thesis is situated in the discourse of risk that defines our technology-driven modern society, wherein one’s health is constructed as a personal and moral responsibility. A key contributor to the individualisation of risk in modern medicine is genomic technology. As genomics becomes progressively normalised in mainstream society, individuals of younger and younger ages are seeking to learn of their genetic risk of disease, including cancer. Young people occupy a formative and transitional life stage with complex processes of human development, making them a unique population for which genetic services are currently ill-equipped to serve appropriately. This research contributes to a new ..

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