Journal article

Development of the Fearless, Tearless Transition model of care for adolescents with an intellectual disability and/or autism spectrum disorder with mental health comorbidities

Evelyn Culnane, Hayley Loftus, Daryl Efron, Katrina Williams, Nikki Di Iorio, Rebecca Shepherd, Catherine Marraffa, Lionel Lubitz, Giuliana Antolovich, Chidambaram Prakash

Developmental Medicine and Child Neurology | WILEY | Published : 2020

Abstract

AIM: First, to understand the barriers to achieving effective transition and the supports required from the perspective of parents and carers, adolescents with intellectual disability and/or autism spectrum disorder and co-existing mental health disorders (often termed 'dual disability'), and those who provide services to this group. Second, to develop an informed model of shared care to improve the transition of adolescents with dual disabilities. METHOD: Carers and a young adult with a dual disability were surveyed about their experience of transition care. Other key stakeholders including paediatricians, general practitioners, and policy makers were also interviewed. These data informed t..

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Grants

Funding Acknowledgements

The RCH Foundation generously funded this project enabling the employment of a dedicated project team. The authors extend their appreciation to Anita Munoz, Jane Tracey, Bob Davis, Kate Thompson-Bowe, Susie Gibb, Tom Connell, and Jill Sewell for their contributions and insights. The authors have stated they had no interests that might be perceived as posing a conflict or bias.