Journal article

Evaluating risk to people with epilepsy during the COVID-19 pandemic: Preliminary findings from the COV-E study

Jennifer Thorpe, Samantha Ashby, Asma Hallab, Ding Ding, Maria Andraus, Patricia Dugan, Piero Perucca, Daniel Costello, Jacqueline A French, Terence J O'Brien, Chantal Depondt, Danielle M Andrade, Robin Sengupta, Norman Delanty, Nathalie Jette, Charles R Newton, Martin J Brodie, Orrin Devinsky, J Helen Cross, Josemir W Sander Show all

Epilepsy & Behavior | ACADEMIC PRESS INC ELSEVIER SCIENCE | Published : 2021

Abstract

The COVID-19 pandemic has caused global anguish unparalleled in recent times. As cases rise, increased pressure on health services, combined with severe disruption to people's everyday lives, can adversely affect individuals living with chronic illnesses, including people with epilepsy. Stressors related to disruption to healthcare, finances, mental well-being, relationships, schooling, physical activity, and increased isolation could increase seizures and impair epilepsy self-management. We aim to understand the impact that COVID-19 has had on the health and well-being of people with epilepsy focusing on exposure to increased risk of seizures, associated comorbidity, and mortality. We desig..

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Grants

Awarded by National Health and Medical Research Council


Awarded by NINDS


Awarded by NIH


Funding Acknowledgements

This study was funded by SUDEP Action Registered charity 1164250 (England & Wales) and supported by the Oxford NIHR Biomedical Research Centre. Conflicts of interest: The authors declare no direct conflicts of interest in relation to this work. We are grateful to all of the following organizations, and many individuals whom we are unable to name individually, for promoting this work through online platforms. We also very much appreciate the valuable input of all the respondents who have completed the surveys. BAND Foundation. Dravet Syndrome UK. Epilepsy Action. Epilepsy Connections. Epilepsy Foundation America. Epilepsy Research UK. Epilepsy Society. Epilepsy Sparks. IBE. ILAE -British Branch. Matthew's Friend. Neurological Alliance. SUDEP Action. PP is supported by the National Health and Medical Research Council (APP1163708), the Epilepsy Foundation, the Royal Australasian College of Physicians, Melbourne Health, and Monash University. DMA is supported by EpLink, Dravet Syndrome Foundation, McLaughlin grants. NJ is the Bludhorn Professor of International Medicine and receives grant funding from NINDS (NIH U24NS107201, NIH IU54NS100064) and PCORI. JHC is supported by the National Institute of Health Research (NIHR) Biomedical Research Centre at Great Ormond Street Hospital, NIHR, Engineering and Physical Sciences Research Council, GOSH Charity, Epilepsy Research UK, and the Waterloo Foundation. JWS is based at UCLH/UCL Comprehensive Biomedical Research Centre, which receives a proportion of funding from the UK Department of Health's NIHR Biomedical Research Centres funding scheme. He receives support from the Dr Marvin Weil Epilepsy Research Fund, the Christelijke Vereniging voor de verpleging van Lijders aan Epilepsie, The Netherlands, and the UK Epilepsy Society. AS is supported by the Oxford NIHR Biomedical Research Centre at the John Radcliffe Hospital, UK.