Young Stroke Survivors' Preferred Methods of Meeting Their Unique Needs: Shaping Better Care

J Keating; K Borschmann; H Johns; L Churilov; J Bernhardt

Journal article

Young Stroke Survivors' Preferred Methods of Meeting Their Unique Needs: Shaping Better Care

J Keating, K Borschmann, H Johns, L Churilov, J Bernhardt

Neurology | LIPPINCOTT WILLIAMS & WILKINS | Published : 2021

DOI: 10.1212/WNL.0000000000011647

Abstract

Objective: To determine how young stroke survivors want their unmet needs to be addressed, we undertook an international online survey of people living with stroke. Methods: Participants self-selected to complete an online survey that included a questionnaire on demographics and stroke-related characteristics, the Young Stroke Needs Screening Tool, and a questionnaire on how they wanted their needs to be met. Results: One hundred seventy-one responses were received (68% female respondents, mean age 45 years, interquartile range 36-51 years). Preferences for methods of meeting needs varied depending on the domain of need and participants' demographic and stroke-related characteristics. Face-t..

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University of Melbourne Researchers

Hannah Johns Author

Leonid Churilov Author

Julie Bernhardt Author

Grants

Funding Acknowledgements

The authors thank the young stroke community consultants who participated in the codesign workshop and all our respondents who took the time to share their experiences. The Florey Institute of Neuroscience and Mental Health acknowledges the support of the Victorian Government's Operational Infrastructure Support Grant.