A qualitative exploration of enablers for hepatitis B clinical management among ethnic Chinese in Australia
Yinzong Xiao, Jack Wallace, Alex Thompson, Margaret Hellard, Caroline van Gemert, Jacinta A Holmes, Catherine Croagh, Jacqui Richmond, Tim Papaluca, Samuel Hall, Thai Hong, Barbara Demediuk, David Iser, Marno Ryan, Paul Desmond, Kumar Visvanathan, Jess Howell
JOURNAL OF VIRAL HEPATITIS | WILEY | Published : 2021
An estimated 18% of people living with chronic hepatitis B (CHB) in Australia were born in China. While guideline-based care, including regular clinical monitoring and timely treatment, prevent CHB-related cirrhosis, cancer and deaths, over three-quarters of people with CHB do not receive guideline-based care in Australia. This qualitative study aimed to identify enablers to engagement in CHB clinical management among ethnic Chinese people attending specialist care. Participants self-identified as of Chinese ethnicity and who attended specialist care for CHB clinical management were interviewed in Melbourne in 2019 (n = 30). Semi-structured interviews covered experiences of diagnosis and eng..View full abstract
Many thanks to all participants with lived experience and their families, who generously shared their time and stories with us. Thank you to the doctors, nurses, receptionists, and interpreters within the liver clinics at St Vincent's Hospital (Melbourne) who supported our study. Thank you also to Dr Lucy Lim and Dr Elliot Freeman who supported our recruitment. JH, AJT, CvG, JW and MH receive fellowship support from the Australian National Health and Medical Research Council. YX is supported by the Melbourne Research Scholarship. JH is supported by a University of Melbourne Faculty Trust Fellowship.