Valuing the voice of lived experience of eating disorders in the research process: Benefits and considerations
Selma Music, Rosiel Elwyn, Grace Fountas, Inge Gnatt, Zoe M Jenkins, Amy Malcolm, Stephanie Miles, Erica Neill, Tamara Simpson, Caitlin OB Yolland, Andrea Phillipou
AUSTRALIAN AND NEW ZEALAND JOURNAL OF PSYCHIATRY | SAGE PUBLICATIONS LTD | Published : 2021
Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is conclude..View full abstract
Awarded by National Health & Medical Research Council (NHMRC)
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: S. Mi. and I.G. are the recipients of Australian Government Research Training Programme Scholarships. A.P. is supported by a National Health & Medical Research Council (NHMRC) Project Grant (CIA; GNT1159953).