Journal article

Maximizing Participant Engagement, Participation, and Retention in Cohort Studies Using Digital Methods: Rapid Review to Inform the Next Generation of Very Large Birth Cohorts

Joanna Nkyekyer, Susan A Clifford, Fiona K Mensah, Yichao Wang, Lauren Chiu, Melissa Wake

JOURNAL OF MEDICAL INTERNET RESEARCH | JMIR PUBLICATIONS, INC | Published : 2021

Abstract

BACKGROUND: Many current research needs can only be addressed using very large cohorts. In such studies, traditional one-on-one phone, face-to-face, or paper-based engagement may not be feasible. The only realistic mechanism for maintaining engagement and participation at this scale is via digital methods. Given the substantial investment being made into very large birth cohort studies, evidence for optimal methods of participant engagement, participation, and retention over sustained periods without in-person contact from researchers is paramount. OBJECTIVE: This study aims to provide an overview of systematic reviews and meta-analyses evaluating alternative strategies for maximizing partic..

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Grants

Awarded by Royal Children's Hospital Foundation


Awarded by Australia's National Health and Medical Research Council (NHMRC)


Awarded by NHMRC Career Development Fellowship


Funding Acknowledgements

This study was funded by GenV. GenV is supported by the Paul Ramsay Foundation, the Victorian Government, the Murdoch Children's Research Institute, and the Royal Children's Hospital Foundation (2019-1226). Research at the Murdoch Children's Research Institute was supported by the Victorian Government's operational infrastructure support program.MW is supported by Australia's National Health and Medical Research Council (NHMRC) Principal Research Fellowship 1160906. FKM is supported by NHMRC Career Development Fellowship 1111160.