Journal article

Genomics governance: advancing justice, fairness and equity through the lens of the African communitarian ethic of Ubuntu

Nchangwi Syntia Munung, Jantina de Vries, Bridget Pratt

MEDICINE HEALTH CARE AND PHILOSOPHY | SPRINGER | Published : 2021

Abstract

There is growing interest for a communitarian approach to the governance of genomics, and for such governance to be grounded in principles of justice, equity and solidarity. However, there is a near absence of conceptual studies on how communitarian-based principles, or values, may inform, support or guide the governance of genomics research. Given that solidarity is a key principle in Ubuntu, an African communitarian ethic and theory of justice, there is emerging interest about the extent to which Ubuntu could offer guidance for the governance of genomics research in Africa. To this effect, we undertook a conceptual analysis of Ubuntu with the goal of identifying principles that could infor..

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Grants

Awarded by NIH


Awarded by Sickle Africa Data Coordinating Centre (N.I.H.)


Awarded by IFGENERA Centre from the National Human Genome Research Institute of the NIH


Funding Acknowledgements

Nchangwi S. Munung received a studentship from the "Stigma in African Genomics" study funded by the NIH (U01HG008226; PI: Jantina de Vries) to conduct this study. She is currently supported by the Sickle Africa Data Coordinating Centre (N.I.H. Grant No: U24HL135600). Jantina de Vries is currently supported by the IFGENERA Centre, which receives funding from the National Human Genome Research Institute of the NIH (U54HG009790). Bridget Pratt is supported by a University of Melbourne R Douglas Wright Research Fellowship and a Faculty of Medicine Dentistry and Health Sciences Bridging Fellowship.