Journal article

Developing a patient-reported experience questionnaire with and for people who use drugs: A community engagement process in Vancouver's Downtown Eastside.

Michelle Olding, Kanna Hayashi, Lindsay Pearce, Brittany Bingham, Michelle Buchholz, Delilah Gregg, Dave Hamm, Laura Shaver, Rachael McKendry, Rolando Barrios, Bohdan Nosyk

Int J Drug Policy | Published : 2018


People who use drugs (PWUD) frequently have complex health care needs, yet face multiple barriers to accessing services. Involving PWUD in health service design and evaluation can enhance the quality of data collected and ensure policy and practice improvements reflect the expressed needs of the population. However, PWUD remain largely excluded from the evaluation of health services that directly affect their lives, including development of patient-reported experience measures (PREMS) that have gained prominence in health services research and clinical practice. Detailed descriptions of PWUD participation in survey design are notably absent in the literature. In this commentary, we present a..

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