Journal article

High quality linked data for stroke obtained using non-government clinical registry and routinely collected hospital and death data

Monique Kilkenny, Joosup Kim, Nadine Andrew, Vijaya Sundararajan, Amanda Thrift, Judith Katzenellenbogen, Felicity Flack, Melina Gattellari, James Boyd, Phil Anderson, Natasha Lannin, Mark Sipthorp, Ying Chen, Trisha Johnston

International Journal of Population Data Science | Swansea University | Published : 2018

Abstract

IntroductionRecent advances in data linkage infrastructure in Australia mean that data can be linked based on various identifiers across datasets. In a first for Australia, we tested the feasibility of linking data between a clinical quality disease registry with Australian and state government health data across multiple jurisdictions. Objectives and ApproachTo determine whether high quality linked data for stroke can be obtained using a non-government managed registry (Australian Stroke Clinical Registry, AuSCR), national death registry data (Australian government), and hospital admission and emergency presentation data (state governments) to assess the accuracy of consistent variables ac..

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