Journal article

Study protocol: the Australian genetics and life insurance moratorium-monitoring the effectiveness and response (A-GLIMMER) project

Jane Tiller, Aideen McInerney-Leo, Andrea Belcher, Tiffany Boughtwood, Penny Gleeson, Martin Delatycki, Kristine Barlow-Stewart, Ingrid Winship, Margaret Otlowski, Louise Keogh, Paul Lacaze

BMC MEDICAL ETHICS | BMC | Published : 2021

Abstract

BACKGROUND: The use of genetic test results in risk-rated insurance is a significant concern internationally, with many countries banning or restricting the use of genetic test results in underwriting. In Australia, life insurers' use of genetic test results is legal and self-regulated by the insurance industry (Financial Services Council (FSC)). In 2018, an Australian Parliamentary Inquiry recommended that insurers' use of genetic test results in underwriting should be prohibited. In 2019, the FSC introduced an industry self-regulated moratorium on the use of genetic test results. In the absence of government oversight, it is critical that the impact, effectiveness and appropriateness of th..

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Grants

Awarded by Australian government's Medical Research Future Fund (MRFF)


Awarded by National Health and Medical Research Council (NHMRC) Early Career Fellowship


Funding Acknowledgements

The project is supported by a grant from the Australian government's Medical Research Future Fund (MRFF), ref 76721. The funder is not involved in designing aspects of the study, but the study proposal underwent competitive peer review through a formal tender process with the Australian government and was selected for funding. PL is supported by a National Heart Foundation Future Leader Fellowship. AML is funded by a National Health and Medical Research Council (NHMRC) Early Career Fellowship (ID 1158111).