The Save Sight Keratoconus Registry - Optometry Module: an opportunity to use real-world data to advance eye care
Himal Kandel, Laura E Downie, Stephanie L Watson
CLINICAL AND EXPERIMENTAL OPTOMETRY | TAYLOR & FRANCIS LTD | Published : 2021
There is increasing focus on the value of real-world clinical registry data in multiple medical disciplines, including ophthalmology. However, disease-focused clinical registries that engage optometrists are rare. This paper introduces the Optometry Module of the Save Sight Keratoconus Registry (SSKR) and highlights the potential advantages it can offer to optometrists for improving their quality of patient care and for engaging in research. Optometrists are primary eye care providers and have a major role in providing clinical care to people with keratoconus. The SSKR system has been developed to collects high-quality information on essential clinical parameters including patient-reported o..View full abstract
The Save Sight Keratoconus Registry was supported by grants from the Ophthalmic Research Institution of Australia, Keratoconus Australia and the Claffy Foundation. H. Kandel is the Kornhauser Research Associate supported by a philanthropic donation from Mr Larry Kornhauser, OAM. SL Watson is supported by the Sydney Medical School Foundation.