Journal article

Development of clinical practice guidelines for allied health and nursing assessment and management of Duchenne muscular dystrophy

ZE Davidson, P Bray, K Rose, MJ Rodrigues, L Corben, KN North, MM Ryan, J Burns

DISABILITY AND REHABILITATION | TAYLOR & FRANCIS LTD | Published : 2021

Abstract

PURPOSE: To provide evidence-based guidance specific to allied health and nursing practice for the assessment and management of individuals with Duchenne muscular dystrophy (DMD). MATERIALS AND METHODS: Thirteen key focus areas were identified in consultation with health professionals and consumer advocacy groups. A series of systematic literature reviews were conducted to identify assessment and management strategies for each key focus area. A consensus process using modified Delphi methodology, including an Australia-New Zealand expert consensus meeting, was conducted. Recommendations underwent consultative review with key groups before being finalised and prepared for dissemination. RESUL..

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Grants

Awarded by Neuromuscular Research Foundation Trust and the Richdale Charitable Trust


Awarded by Australian National Health & Medical Research Council Centre of Research Excellence in Neuromuscular Disorders


Funding Acknowledgements

This work was supported by the Neuromuscular Research Foundation Trust and the Richdale Charitable Trust to support the expert consensus meeting. Zoe Davidson and Paula Bray were supported by funding from the Australian National Health & Medical Research Council RARE-Bestpractices [ID#1055131] and from the Australian National Health & Medical Research Council Centre of Research Excellence in Neuromuscular Disorders [ID #1031893].