Journal article

Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences

Christine Bigby, Jacinta Douglas, Elizabeth Smith, Terry Carney, Shih-Ning Then, Ilan Wiesel

JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY | ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD | Published : 2021

Abstract

Background: Supporting participation in decision making is complex, dynamic and multifactorial. The aim of this study was to understand more about the difficulties parents of adults with intellectual disabilities experienced in providing decision support and their strategies for resolving them. Method: Participants were 23 parents who regularly provided decision support for their adult with intellectual disabilities. Most of the adults (19) lived at home. Parents participated in semi-structured interviews at least three times during the study. We applied a social-constructionist theoretical perspective and a template approach for analysis. Results: Findings fell into three core categories, m..

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