Is the search for cerebral palsy 'cures' a reasonable and appropriate goal in the 2020s?
Ingrid Honan, Megan Finch-Edmondson, Christine Imms, Iona Novak, Amy Hogan, Shannon Clough, Bruce Bonyhady, Sarah McIntyre, Catherine Elliott, Shirley Wong, Michael Bink, Nadia Badawi
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | WILEY | Published : 2021
In the field of disability research and advocacy, the notion of 'cures' is contentious. Cerebral palsy (CP) is no exception. In this narrative review, we combine perspectives gained during community consultation undertaken for the Australian and New Zealand Cerebral Palsy Strategy, 2020 with those published in the scientific and grey literature to understand whether 'cures for CP' is a reasonable and appropriate goal. We frame these perspectives through the lens of several ethical principles central to the discussion. These include maintaining hope while also being realistic, sensitivity to sharply different viewpoints amongst people with disability and their families, and responding to comm..View full abstract