Achieving inclusive research priority-setting: what do people with lived experience and the public think is essential?
BMC MEDICAL ETHICS | BMC | Published : 2021
BACKGROUND: Engagement of people with lived experience and members of the public is an ethically and scientifically essential component of health research. Authentic engagement means they are involved as full partners in research projects. Yet engagement as partnership is uncommon in practice, especially during priority-setting for research projects. What is needed for agenda-setting to be shared by researchers and people with lived experience and/or members of the public (or organisations representing them)? At present, little ethical guidance exists on this matter, particularly that which has been informed by the perspectives of people with lived experience and members of the public. This ..View full abstract
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Awarded by Australian Research Council (ARC) Discovery Early Career Researcher Award
At the time of this study, BP was supported by an Australian Research Council (ARC) Discovery Early Career Researcher Award (Award No. DE170100414). The contents of this article are solely the responsibility of the author and do not reflect the views of the ARC. The ARC had no involvement in the design or conduct of this study, or in writing this manuscript.