Journal article

Locus-of-care disparities in end-of-life care intensity among adolescents and young adults with cancer: A population-based study using the IMPACT cohort

Hallie Coltin, Adam Rapoport, Nancy N Baxter, Chenthila Nagamuthu, Paul C Nathan, Jason D Pole, Franco Momoli, Sumit Gupta

CANCER | WILEY | Published : 2021


BACKGROUND: Adolescents and young adults (AYAs) with cancer may experience elevated rates of high-intensity end-of-life (HI-EOL) care. Locus-of-care (LOC) disparities (pediatric vs adult) in AYA end-of-life (EOL) care are unstudied. METHODS: A decedent population-based cohort of Ontario AYAs diagnosed between 1992 and 2012 at the ages of 15 to 21 years was linked to administrative data. The authors determined the prevalence and associations of a composite outcome of HI-EOL care that included any of the following: intravenous chemotherapy within 14 days of death, more than 1 emergency department visit, more than 1 hospitalization, or an intensive care unit (ICU) admission within 30 days of de..

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Funding Acknowledgements

This study was supported by Alex's Lemonade Stand (through a Young Investigator Grant), the Canadian Institutes of Health Research, and the C<SUP>17</SUP> Research Network and was facilitated by the Pediatric Oncology Group of Ontario Networked Information System, which is financially supported by the Ontario Ministry of Health and Long-Term Care. This study was also supported by ICES, which is funded by an annual grant from the Ontario Ministry of Health and Long-Term Care. Parts of this material are based on data and information compiled and provided by the Canadian Institute for Health Information and Cancer Care Ontario. The analyses, conclusions, opinions, and statements expressed herein are solely those of the authors and do not reflect those of the funding or data sources (including the Ministry of Government Services); no endorsement is intended or should be inferred. Ontario privacy regulations prevent the sharing of individual health information.