Journal article

Identifying and integrating patient and caregiver perspectives in clinical practice guidelines for percutaneous renal biopsy.

Talia Gutman, Pamela Lopez-Vargas, Karine E Manera, Jonathan C Craig, Martin Howell, David Tunnicliffe, Laura J James, Rob MacGinley, Emily See, Jeffrey Wong, David Voss, John Saunders, Solomon Menahem, Shilpanjali Jesudason, Allison Tong, Paul Champion de Crespigny

Nephrology (Carlton) | Published : 2019

Abstract

AIM: Percutaneous renal biopsy is often essential for providing reliable diagnostic and prognostic information for people with suspected kidney disease, however the procedure can lead to complications and concerns among patients. This study aims to identify and integrate patient priorities and perspectives into the Kidney Health Australia - Caring for Australasians with Renal Impairment clinical practice guidelines for renal biopsy, to ensure patient-relevance. METHODS: We convened a workshop, consisting of three simultaneous focus groups and a plenary session, with 10 patients who had undergone a renal biopsy and seven caregivers. Topics and outcomes prioritized by patients and their caregi..

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University of Melbourne Researchers