Journal article
Consensus core clinical data elements for meningiomas (v2021.1)
F Nassiri, JZ Wang, K Au, J Barnholtz-Sloan, MD Jenkinson, K Drummond, Y Zhou, JM Snyder, P Brastianos, T Santarius, S Suppiah, L Poisson, F Gaillard, M Rosenthal, T Kaufmann, DS Tsang, K Aldape, G Zadeh
Neuro Oncology | Published : 2022
Abstract
Background: With increasing molecular analyses of meningiomas, there is a need to harmonize language used to capture clinical data across centers to ensure that molecular alterations are appropriately linked to clinical variables of interest. Here the International Consortium on Meningiomas presents a set of core and supplemental meningioma-specific common data elements (CDEs) to facilitate comparative and pooled analyses. Methods: The generation of CDEs followed the 4-phase process similar to other National Institute of Neurological Disorders and Stroke (NINDS) CDE projects: Discovery, internal validation, external validation, and distribution. Results: The CDEs were organized into patient-..
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Awarded by National Cancer Institute
Funding Acknowledgements
This study was funded by grants from the Canadian Institutes of Health Research (CIHR) and Brain Tumour Charity (BTC) (grant number GN-000693).