Journal article
Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures
J Kwon, L Freijser, E Huynh, M Howell, G Chen, K Khan, S Daher, N Roberts, C Harrison, S Smith, N Devlin, K Howard, E Lancsar, C Bailey, J Craig, K Dalziel, A Hayes, B Mulhern, G Wong, J Ratcliffe Show all
Pharmacoeconomics | ADIS INT LTD | Published : 2022
Abstract
Background and Aims: Patient-reported outcome measures (PROMs) for children (aged ≤ 18 years) present methodological challenges. PROMs can be categorised by their diverse underlying conceptual bases, including functional, disability and health (FDH) status; quality of life (QoL); and health-related quality of life (HRQoL). Some PROMs are designed to be accompanied by preference weights. PROMs should account for childhood developmental differences by incorporating age-appropriate health/QoL domains, guidance on respondent type(s) and design. This systematic review aims to identify generic multidimensional childhood PROMs and synthesise their characteristics by conceptual basis, target age, me..
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Awarded by National Institute for Health Research
Funding Acknowledgements
This research has been funded by the Australian Government's Medical Research Future Fund under Grants MRF1200816 and MRF1199902. SP receives support as a National Institute for Health Research (NIHR) Senior Investigator (NF-SI-0616-10103) and from the NIHR Applied Research Collaboration Oxford and Thames Valley. CH is funded by an NIHR Doctoral Research Fellowship (NIHR300684). The views expressed are those of the authors and not necessarily those of the Australian Government, the NIHR or the Department of Health and Social Care in England.