Journal article

Impact of “early intervention” parent workshops on outcomes for caregivers of children with neurodisabilities: a mixed-methods study

L Miller, C Imms, A Cross, K Pozniak, B O’Connor, R Martens, V Cavalieros, R Babic, M Novak-Pavlic, M Rodrigues, A Balram, D Hughes, J Ziviani, P Rosenbaum

Disability and Rehabilitation | TAYLOR & FRANCIS LTD | Published : 2023

Abstract

Purpose: This study explored the feasibility, impact and parent experiences of ENVISAGE (ENabling VISions And Growing Expectations)-Families, a parent-researcher co-designed and co-led program for parents/caregivers raising children with early-onset neurodisabilities. Methods: Parents/caregivers of a child with a neurodisability aged ≤6 years, recruited in Australia and Canada, participated in five weekly online workshops with other parents. Self-report measures were collected at baseline, immediately after, and 3 months post-ENVISAGE-Families; interviews were done following program completion. Quantitative data were analyzed with generalized estimating equations and qualitative data using i..

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University of Melbourne Researchers