Journal article
CELPI: trial protocol for a randomised controlled trial of a Carer End of Life Planning Intervention in people dying with dementia
G Arendts, L Chenoweth, B Hayes, E Campbell, M Agar, C Etherton-Beer, K Spilsbury, K Howard, G Braitberg, M Cubitt, C Sheehan, L Magann, T Sudharshan, L Schnitker, J Pearce, I Gilmore, N Cerra, J duPreez, R Jaworski, SC Soh Show all
BMC Geriatrics | Published : 2022
Abstract
Background: Dementia is a leading cause of death in developed nations. Despite an often distressing and symptom laden end of life, there are systematic barriers to accessing palliative care in older people dying of dementia. Evidence exists that 70% of people living with severe dementia attend an emergency department (ED) in their last year of life. The aim of this trial is to test whether a Carer End of Life Planning Intervention (CELPI), co-designed by consumers, clinicians and content specialists, improves access to end of life care for older people with severe dementia, using an ED visit as a catalyst for recognising unmet needs and specialist palliative care referral where indicated. Me..
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Funding Acknowledgements
This project is funded under the Australian National Health & Medical Research Council's Targeted Call for Research in End of Life Care funding scheme (GNT2006061). The Study Protocol has undergone full external peer review by this non-commercial funding body as part of the peer review process. The University of Western Australia is trial sponsor. This is an investigator driven trial and the sponsor will have no role in data analysis or decisions regarding publishing data collected from the trial.