Journal article
Comparative Psychometric Performance of Common Generic Paediatric Health-Related Quality of Life Instrument Descriptive Systems: Results from the Australian Paediatric Multi-Instrument Comparison Study
R Jones, R O’Loughlin, X Xiong, M Bahrampour, N Devlin, H Hiscock, G Chen, B Mulhern, K Dalziel
Pharmacoeconomics | ADIS INT LTD | Published : 2024
Open access
Abstract
Objective: The aim of this study was to compare the psychometric performance of common generic paediatric health-related quality-of-life instrument descriptive systems (PedsQL generic core 4.0, EQ-5D-Y-3L, EQ-5D-Y-5L, Child Health Utility 9D [CHU9D], Assessment of Quality of Life 6D [AQoL-6D], and Health Utilities Index Mark 3 [HUI3]) by child age, report type, and health status. Methods: Data for children aged 5–18 years were from the Australian Paediatric Multi-Instrument Comparison study. Ceiling effects, test–retest reliability, known-group validity, convergent and divergent validity, and responsiveness were assessed in the total sample and by child age (5–12 years vs 13–18 years), repor..
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Awarded by Flinders University
Funding Acknowledgements
We would like to thank the QUOKKA study investigators, research fellows and research assistants: Richard Norman, Rosalie Viney, Julie Ratcliffe, Deborah Street, Cate Bailey, Christine Mpundu-Kaambwa, Tessa Peasgood, Kristy McGregor and Shilana Yip. We would also like to thank the children and families for taking the time to complete the study as well as members of the consumer advisory group who helped pilot, test and refine different elements of this study. Finally, we would like to sincerely thank Dr Oliver Rivero-Arias for providing guidance and feedback during the development of this manuscript.