Self-Reported Stuttering Severity Is Accurate: Informing Methods for Large-Scale Data Collection in Stuttering

Sarah Horton; Victoria Jackson; Jessica Boyce; Marie-Christine Franken; Stephanie Siemers; Miya St John; Stephen Hearps; Olivia van Reyk; Ruth Braden; Richard Parker; Adam P Vogel; Else Eising; David J Amor; Janelle Irvine; Simon E Fisher; Nicholas G Martin; Sheena Reilly; Melanie Bahlo; Ingrid Scheffer; Angela Morgan

Journal article

Self-Reported Stuttering Severity Is Accurate: Informing Methods for Large-Scale Data Collection in Stuttering

Sarah Horton, Victoria Jackson, Jessica Boyce, Marie-Christine Franken, Stephanie Siemers, Miya St John, Stephen Hearps, Olivia van Reyk, Ruth Braden, Richard Parker, Adam P Vogel, Else Eising, David J Amor, Janelle Irvine, Simon E Fisher, Nicholas G Martin, Sheena Reilly, Melanie Bahlo, Ingrid Scheffer, Angela Morgan

Journal of Speech, Language and Hearing Research | American Speech-Language-Hearing Association | Published : 2024

DOI: 10.1044/2023_JSLHR-23-00081

Abstract

PURPOSE: To our knowledge, there are no data examining the agreement between self-reported and clinician-rated stuttering severity. In the era of big data, self-reported ratings have great potential utility for large-scale data collection, where cost and time preclude in-depth assessment by a clinician. Equally, there is increasing emphasis on the need to recognize an individual's experience of their own condition. Here, we examined the agreement between self-reported stuttering severity compared to clinician ratings during a speech assessment. As a secondary objective, we determined whether self-reported stuttering severity correlated with an individual's subjective impact of stuttering. ME..

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University of Melbourne Researchers

Vicki Jackson Author

Jessica Boyce Author

Miya St John Author

Stephen J. C. Hearps Author

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Grants

Awarded by Nederlandse Organisatie voor Wetenschappelijk Onderzoek

Funding Acknowledgements

National Health and Medical Research Council (NHMRC) Centre for Research Excellence in Speech and Language Neurobiology Grant 1116976, Project Grant APP1160893, and NHMRC Practitioner Fellowships were awarded to A.T.M. (Grant 1105008) and I.E.S. (Grant 1104831); an NHMRC Dementia Fellowship (Grant 1135683) and Australian Research Council Future Fellow ship (Grant 220100253) were awarded to A.P.V.; an NHMRC Senior Research Fellowship was awarded to M.B. (Grant 1195236); and Dutch Research Council (Nederlandse Organisatie voor Wetenschappelijk Onderzoek) VI.Veni.202.072 was awarded to E.E. E.E. and S.E.F. are supported by the Max Planck Society. The research conducted at the Murdoch Children's Research Institute was supported by the Victorian Government's Operational Infrastructure Support Program. The authors would like to thank all individuals and families who participated in this research study.