Journal article
Involvement of children and young people in the conduct of health research: A rapid umbrella review
KA Wyatt, J Bell, J Cooper, L Constable, W Siero, C Pozo Jeria, S Darling, R Smith, EK Hughes
Health Expectations | Published : 2024
DOI: 10.1111/hex.14081
Open access
Abstract
Background: Patient and public involvement and engagement (PPIE) have long been considered important to good research practice. There is growing, yet diverse, evidence in support of PPIE with children and young people (CYP). We must now understand the various approaches to involvement of CYP in research. Aims: This rapid umbrella review aimed to provide an overview of when, how and to what extent CYP are involved in the conduct of health research, as well as the reported benefits, challenges, and facilitators of involvement. Methods: We searched OVID Medline, Embase and PubMed. Published reviews were included if they reported meaningful involvement of CYP in the conduct of health research. E..
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Funding Acknowledgements
The authors acknowledge Professor Melissa Wake for their contribution to sourcing funding and initial conceptualisation of the work. They would also like to thank The Royal Children's Hospital research librarian, Poh Chua, for their support and assistance in developing the search strategy used for this umbrella review. Open access publishing facilitated by The University of Melbourne, as part of the Wiley - The University of Melbourne agreement via the Council of Australian University Librarians. This work was funded by the University of Cambridge's (UOC) Data Trusts Initiative and philanthropic donation by Roz Zalewski OAM and Jeremy Ruskin KC. The Data Trusts Initiative is hosted by the UOC Department of Computer Science and Technology, organised in collaboration with the University of Birmingham, and supported by a donation from Patrick J. McGovern Foundation. Research at the Murdoch Children's Research Institute is supported by the Victorian Government's Operational Infrastructure Support Program.