Genetic counseling and testing for dementia – A scoping review of patient and relatives experiences and outcomes

Abstract

Objective: This scoping review aims to map the experiences and outcomes of patients and their families undergoing genetic testing and counseling regarding dementia to inform future research directions and clinical practice. Methods: Rigorous scoping review methodology was followed. Ovid Medline, Embase, PsycINFO, and CINAHL were searched with keywords and MeSH terms related to “genetic testing”, “genetic counseling”, “dementia”, “decision making”, and “patient outcomes” for peer-reviewed studies with adult participants published over the last ten years. Results: Thirty-six articles met inclusion criteria. Narrative synthesis organized findings into temporal categories including motivations f..