Issues in the clinical assessment and management of people living with motor neurone disease (MND): a survey of Australian healthcare professionals.

Ines Semendric; Zachary Munn; Tom Jenkins; Alicia Edwards; Victoria Tull; Vivienne Travlos; Karen Hutchinson; Lillian Krikheli; Nicole Sheers; Lesley-Ann Hall; Phyllis Chua; Nicole Hatch; Peter Allcroft; Barry Werth; Annie Saffrett; Jaclyn Yoong; Laura Cooper; Monique Signorelli; Emily Farrugia; Emma Devenney; Arabelle Douglas; Alicia Gibb; Mandi Macshane; Matthew Gardiner; Annette Collins; Jie Yang; Bernadette Rogerson; David Schultz; Deidre Lim; Fiona Fisher; Helen Herz; Holly Puckering; Ingrid Swain; John Cameron; Laura Donnelly; Leanne Davis; Lilian Anderson; Melissa Acampora; Rachel Heatley; Shana Taubert; Timothy Sheehy; Trinh Sia; Vinod Aiyappan; William Huynh; Cindy Stern; Australian MND Guideline Clinical and Content Advisory Group

Journal article

Issues in the clinical assessment and management of people living with motor neurone disease (MND): a survey of Australian healthcare professionals.

Ines Semendric, Zachary Munn, Tom Jenkins, Alicia Edwards, Victoria Tull, Vivienne Travlos, Karen Hutchinson, Lillian Krikheli, Nicole Sheers, Lesley-Ann Hall, Phyllis Chua, Nicole Hatch, Peter Allcroft, Barry Werth, Annie Saffrett, Jaclyn Yoong, Laura Cooper, Monique Signorelli, Emily Farrugia, Emma Devenney Show all

Amyotroph Lateral Scler Frontotemporal Degener | Published : 2026

DOI: 10.1080/21678421.2026.2710550

Open access

Abstract

Objective: To inform the development of the Australian MND Guideline, this study aimed to identify challenges Australian healthcare professionals (HCPs) face in the clinical assessment and management of people living with MND (plwMND) including where practice varies from evidence or is underrepresented in the literature and challenges that arise when supporting non-MND specialists. Methods: An anonymous online survey was developed on Qualtrics (Provo, UT) and distributed in July 2025 to members of the Australian MND Guideline Clinical and Content Advisory Group. Demographic data were analyzed using descriptive statistics and verbatim responses were analyzed thematically to a pre-defined fram..

View full abstract