Risk perceptions and knowledge of breast cancer genetics in women at increased risk of developing hereditary breast cancer

Abstract

This multicentre study investigated accuracy of perceived breast cancer risk and breast cancer genetics knowledge in 333 women at increased risk of developing hereditary breast cancer. Only women who had never been affected by breast cancer and approached one of 14 familial cancer clinics for advice about their breast cancer risk were assessed prior to their attendance at the clinic. Eleven percent of women underestimated. 57% accurately estimated their risk and 32% overestimated their breast cancer risk. Compared to accurate estimators, overestimators were younger (OR = 0.97: 95% CI, 0.95-1.00;P = .051), had higher breast cancer anxiety levels (OR = 1.03; 95% CI, 1.01-1.05; p = .0038) and w..