Journal article

A discrete choice experiment of preferences for genetic counselling among Jewish women seeking cancer genetics services

S Peacock, C Apicella, L Andrews, K Tucker, A Bankier, MB Daly, JL Hopper

BRITISH JOURNAL OF CANCER | NATURE PUBLISHING GROUP | Published : 2006

Abstract

To determine which aspects of breast cancer genetic counselling are important to Ashkenazi Jewish women, a discrete choice experiment was conducted. Participants consisted of 339 Australian Ashkenazi Jewish women who provided a blood sample for research used to test for Ashkenazi Jewish ancestral mutations in the genes BRCA1 and BRCA2, and were offered their genetic test result through a cancer genetics service. Main outcome measures were women's preferences for, and trade-offs between, the genetic counselling aspects of providing cancer, gene, and risk information (information); giving advice about cancer surveillance (surveillance); preparing for genetic testing (preparation); and, assista..

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