Journal article

Research with bereaved parents: a question of how not why

JL Hynson, R Aroni, C Bauld, SM Sawyer

PALLIATIVE MEDICINE | SAGE PUBLICATIONS LTD | Published : 2006

Abstract

BACKGROUND: There is tension around the notion of research with bereaved parents. While it is recognised that the care of children with palliative care needs will only improve with better understanding of parent perspectives, the vulnerability of bereaved parents is equally recognised as a challenge to ethical research. An emerging literature suggests that research can be safely and ethically conducted with bereaved families, if performed sensitively. However, little is known about what research processes might enhance ethical research practice in this field. AIM: To explore the impact of the research process on bereaved parents, and to identify what elements enhance the experience of resear..

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