Journal article

Psychometric properties of the quality of life questionnaire for children with CP

Elizabeth Waters, Elise Davis, Andrew Mackinnon, Roslyn Boyd, H Kerr Graham, Sing Kai Lo, Rory Wolfe, Richard Stevenson, Kristie Bjornson, Eve Blair, Peter Hoare, Ulrike Ravens-Sieberer, Dinah Reddihough

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | BLACKWELL PUBLISHING | Published : 2007

Abstract

This paper describes the development and psychometric properties of a condition-specific quality of life instrument for children with cerebral palsy (CP QOL-Child). A sample of 205 primary caregivers of children with CP aged 4 to 12 years (mean 8y 5mo) and 53 children aged 9 to 12 years completed the CP QOL-Child. The children (112 males, 93 females) were sampled across Gross Motor Function Classification System (GMFCS) levels (Level I=18%, II=28%, III=14%, IV=11%, V=27%). Primary caregivers also completed other measures of child health (Child Health Questionnaire; CHQ), QOL (KIDSCREEN), and functioning (GMFCS). Internal consistency ranged from 0.74 to 0.92 for primary caregivers and from 0...

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