Defining the content for a new quality of life questionnaire for students with low vision (the Impact of Vision Impairment on Children: IVI_C)

Abstract

Purpose: To obtain statements describing the impact of vision impairment on participation in every day activities of school-aged children (8-18 years) capturing their opinion, as the primary step in developing a pediatric vision-related quality of life instrument. Methods: Separate focus groups for students with low vision, parents and teachers plus in-depth individual interviews were conducted in Victoria, Australia. Focus groups followed a topic guide, were digitally audio recorded and transcribed verbatim. Statements were identified, coded and ascribed into major themes. Results: 102 participants provided just over 2600 statements (an average of 146 statements per verbatim transcript) whi..