Reproductive and sexual health in boys with cystic fibrosis: What do parents know and say?

Abstract

Objective: Improved life expectancy in cystic fibrosis (CF) alters the significance of developmentally relevant aspects such as sexual and reproductive health (SRH). Men with CF report parents are an important source of information about infertility, but parent perspectives remain unknown. The aim of this study was to systematically explore parents' knowledge, attitudes and behaviors regarding the SRH education of their sons. Patients and Methods: Eligible participants were parents of boys with CF aged at least 6 years who completed a 61 -item written questionnaire that was developed to measure parent knowledge and education about CF-specific aspects of SRH, and parent attitudes and behavior..