Journal article

Is uptake of genetic testing for colorectal cancer influenced by knowledge of insurance implications?

Louise A Keogh, Christine M van Vliet, David M Studdert, Judith A Maskiell, Finlay A Macrae, D James St John, Clara L Gaff, Mary Anne Young, Melissa C Southey, Graham G Giles, Doreen A Rosenthal, John L Hopper, Mark A Jenkins

Medical Journal of Australia | AUSTRALASIAN MED PUBL CO LTD | Published : 2009


OBJECTIVE: To assess whether knowledge of insurance implications influenced uptake of genetic testing by participants in a research study of the causes of colorectal cancer. DESIGN, SETTING AND PARTICIPANTS: Analysis of uptake of genetic testing by participants in the population-based Victorian Colorectal Cancer Family Study during two periods: from 1999 to 2003, when participants were not informed of any potential effect of genetic testing conducted during the study on their eligibility for new insurance policies; and from 2003 to 2006, when the protocol was changed to provide participants with information on the potential effect of genetic testing on insurance eligibility. MAIN OUTCOME MEA..

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Funding Acknowledgements

We gratefully acknowledge Dr Letitia Smith for her work on this study; Professor Margaret Otlowski for providing useful comments; and the genetic counsellors for their help in guiding us through the clinical referral process. Louise Keogh was supported by a National Health and Medical Research Council (NHMRC) Australian Research Training Fellowship. David Studdert was supported by a Federation Fellowship from the Australian Research Council. Melissa Southey is an NHMRC Senior Research Fellow. John Hopper is an Australia Fellow of the NHMRC.