Is uptake of genetic testing for colorectal cancer influenced by knowledge of insurance implications?
Louise A Keogh, Christine M van Vliet, David M Studdert, Judith A Maskiell, Finlay A Macrae, D James St John, Clara L Gaff, Mary Anne Young, Melissa C Southey, Graham G Giles, Doreen A Rosenthal, John L Hopper, Mark A Jenkins
Medical Journal of Australia | AUSTRALASIAN MED PUBL CO LTD | Published : 2009
OBJECTIVE: To assess whether knowledge of insurance implications influenced uptake of genetic testing by participants in a research study of the causes of colorectal cancer. DESIGN, SETTING AND PARTICIPANTS: Analysis of uptake of genetic testing by participants in the population-based Victorian Colorectal Cancer Family Study during two periods: from 1999 to 2003, when participants were not informed of any potential effect of genetic testing conducted during the study on their eligibility for new insurance policies; and from 2003 to 2006, when the protocol was changed to provide participants with information on the potential effect of genetic testing on insurance eligibility. MAIN OUTCOME MEA..View full abstract
We gratefully acknowledge Dr Letitia Smith for her work on this study; Professor Margaret Otlowski for providing useful comments; and the genetic counsellors for their help in guiding us through the clinical referral process. Louise Keogh was supported by a National Health and Medical Research Council (NHMRC) Australian Research Training Fellowship. David Studdert was supported by a Federation Fellowship from the Australian Research Council. Melissa Southey is an NHMRC Senior Research Fellow. John Hopper is an Australia Fellow of the NHMRC.