Journal article

Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents

Elise Davis, Amy Shelly, Elizabeth Waters, Andrew Mackinnon, Dinah Reddihough, Roslyn Boyd, H Kerr Graham

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | WILEY | Published : 2009

Abstract

Quality of life (QOL) has emerged over the past 20 years as an outcome for measuring the effectiveness of health-improvement interventions. The Cerebral Palsy Quality of Life Questionnaire for Children (CPQOL-Child) is well regarded and now integrated into research internationally. We describe the results of qualitative research, using grounded research in which we aimed to identify domains of QOL for adolescents with cerebral palsy (CP) from adolescent and parent perspectives to guide the development of an adolescent version. Seventeen adolescents (nine males, eight females) aged 13 to 18 years (mean=15.53 SD=1.74), with varying levels of impairment (Gross Motor Function Classification Syst..

View full abstract

Grants

Funding Acknowledgements

We acknowledge the support of the Financial Markets Foundation for Children, the Jack Brockhoff Foundation, the William Buckland Foundation and the Murdoch Children's Research Institute, which provided funding for this study. Support is provided by the National Health and Medical Research Council for RB (Career Development Fellowship). ED and EW are supported by Victorian Health Promotion Foundation Public Health Fellowships. We also thank Sue Reid, manager of the Victorian Cerebral Palsy Register, who assisted in the selection of participants in this project.