Journal article

Genetic selection for deafness: the views of hearing children of deaf adults

C Mand, RE Duncan, L Gillam, V Collins, MB Delatycki

JOURNAL OF MEDICAL ETHICS | BMJ PUBLISHING GROUP | Published : 2009

Abstract

The concept of selecting for a disability, and deafness in particular, has triggered a controversial and sometimes acrimonious debate between key stakeholders. Previous studies have concentrated on the views of the deaf and hard of hearing, health professionals and ethicists towards reproductive selection for deafness. This study, however, is the first of its kind examining the views of hearing children of deaf adults towards preimplantation genetic diagnosis and prenatal diagnosis to select for or against deafness. Hearing children of deaf adults (or CODAs, as they call themselves, and are widely known in the deaf community) straddle both the deaf and hearing worlds, and this dual perspecti..

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