Journal article

Quality of life instruments for children and adolescents with neurodisabilities: how to choose the appropriate instrument

Elizabeth Waters, Elise Davis, Gabriel M Ronen, Peter Rosenbaum, Michael Livingston, Saroj Saigal

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY | WILEY | Published : 2009

Abstract

AIM: There are many misconceptions about what constitutes 'quality of life' (QoL). It is often difficult for researchers and clinicians to determine which instruments will be most appropriate to their purpose. The aim of the current paper is to describe QoL instruments for children and adolescents with neurodisabilities against criteria that we think are important when choosing or developing a QoL instrument. METHOD: QoL instruments for children and adolescents with neurodisabilities were reviewed and described based on their purpose, conceptual focus, origin of domains and items, opportunity for self report, clarity (lack of ambiguity), potential threat to self-esteem, cognitive or emotiona..

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