Guidelines for management of scoliosis in rett syndrome patients based on expert consensus and clinical evidence

Abstract

Study Design.: Modified Delphi technique. Objective.: To develop guidelines for the clinical management of scoliosis in Rett syndrome through evidence review and consensus expert panel opinion. Summary of Background Data.: Rett syndrome is a rare disorder and clinical expertise is thus with small case series. Scoliosis is a frequent association and the evidence base dealing with scoliosis management in this syndrome is limited. Parents of affected girls and women have expressed needs for more information about scoliosis and Rett syndrome. Methods.: An initial draft of scoliosis guidelines was created based on literature review and open-ended questions where the literature was lacking. Perspe..