The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis
Rony E Duncan, Lynn Gillam, Julian Savulescu, Robert Williamson, John G Rogers, Martin B Delatycki
FAMILIAL CANCER | SPRINGER | Published : 2010
Predictive genetic tests for familial adenomatous polyposis (FAP) are routinely offered to young people during early adolescence. While this is not controversial, due to the medical benefit conferred by the test, it is nonetheless challenging as a consequence of the stage of life of the young people, and the simultaneous involvement of multiple family members. Despite these challenges, it is possible to ensure that the test is offered in such a way that it actively acknowledges and facilitates young people's developing autonomy and psychosocial well-being. In this paper we present findings from ten in-depth interviews with young people who have undergone predictive genetic testing for FAP (f..View full abstract
We thank the 10 young people who participated in interviews as part of this study. We also thank Professor Susan Sawyer for her helpful comments on this paper. MBD is an NHMRC Practitioner Fellow. RED is an NHMRC Postdoctoral Research Fellow.