Genetic Health Professionals and the Communication of Genetic Information in Families: Practice During and After a Genetic Consultation
Laura E Forrest, Martin B Delatycki, Lisette Curnow, Loan Skene, MaryAnne Aitken
American Journal of Medical Genetics. Part A | WILEY-LISS | Published : 2010
The communication of genetic information in families is an important process which can inform family members that they are at risk. However, evidence suggests that at-risk family members are often uninformed. Genetic health professionals have a role to assist consultands to communicate genetic information to their family members. Therefore, the aim of this study was to investigate genetic health professionals' practice with regard to the familial implications of a genetic diagnosis and subsequent family communication. An online survey resulted in 626 responses from genetic health professionals internationally. The results indicated that over 90% of genetic health professionals consistently c..View full abstract
We thank the Australian Research Council for funding this project and the Murdoch Childrens Research Institute and Genetic Health Services Victoria for their ongoing support. We would also like to acknowledge Susan Doneth for her assistance with the statistical analysis. Thank you to the genetic health professionals who responded to the online survey. We acknowledge the National Health and Medical Research Council for funding Assoc. Prof Martin Delatycki.