Journal article

Health-related quality of life and strain in caregivers of Australians with Parkinson's disease: An observational study

David H Kelly, Jennifer L McGinley, Frances E Huxham, Hylton B Menz, Jennifer J Watts, Robert Iansek, Anna T Murphy, Mary Danoudis, Brooke Adair, Meg E Morris



BACKGROUND: The relationship between health-related quality of life (HRQoL) in people with Parkinson's disease and their caregivers is little understood and any effects on caregiver strain remain unclear. This paper examines these relationships in an Australian sample. METHODS: Using the generic EuroQol (EQ-5D) and disease-specific Parkinson's Disease Questionnaire-39 Item (PDQ-39), HRQoL was evaluated in a sample of 97 people with PD and their caregivers. Caregiver strain was assessed using the Modified Caregiver Strain Index. Associations were evaluated between: (i) caregiver and care-recipient HRQoL; (ii) caregiver HRQoL and caregiver strain, and; (iii) between caregiver strain and care-r..

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Awarded by National Health and Medical Research Council (Clinical Career Development Award)

Funding Acknowledgements

This project has been funded by a Michael J Fox Foundation (US) Clinical Discovery Grant. HBM is currently a National Health and Medical Research Council Fellow (Clinical Career Development Award, ID: 433049). We would like to thank the participants with PD and their caregivers for their time and willingness to participate in this study. We gratefully acknowledge the statistical expertise and assistance from Bob Powell.