Development and validation of a measurement tool to assess perceptions of palliative care
Donna Milne, Sanchia Aranda, Michael Jefford, Penelope Schofield
PSYCHO-ONCOLOGY | WILEY | Published : 2013
OBJECTIVES: Understanding patient's perceptions about palliative care is necessary to make an effective referral. The aim was to develop and validate a measure of patient perceptions. METHODS: Items were generated through patient, family caregiver and health professional interviews. The Perceptions of Palliative Care Instrument (PPCI) was administered to 85 patients with advanced cancer (AC). A subset (n = 39) completed it 7 days later. Participants also completed the Palliative Care Outcome Scale (POS), the Edmonton Symptom Assessment Scale (ESAS) and the Distress Thermometer (DT) for validation purposes. RESULTS: Factor analysis revealed four domains (positive and negative emotional and co..View full abstract
A/Prof. Schofield is supported by National Health and Medical Research Council Research Fellowship (CDA Level 2). The authors would like to thank all the patients who participated and acknowledge and give special thanks to Anna Ugalde for her assistance and critical review of this manuscript.