Journal article

Development and validation of a measurement tool to assess perceptions of palliative care

Donna Milne, Sanchia Aranda, Michael Jefford, Penelope Schofield

PSYCHO-ONCOLOGY | WILEY | Published : 2013

Abstract

OBJECTIVES: Understanding patient's perceptions about palliative care is necessary to make an effective referral. The aim was to develop and validate a measure of patient perceptions. METHODS: Items were generated through patient, family caregiver and health professional interviews. The Perceptions of Palliative Care Instrument (PPCI) was administered to 85 patients with advanced cancer (AC). A subset (n = 39) completed it 7 days later. Participants also completed the Palliative Care Outcome Scale (POS), the Edmonton Symptom Assessment Scale (ESAS) and the Distress Thermometer (DT) for validation purposes. RESULTS: Factor analysis revealed four domains (positive and negative emotional and co..

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