Journal article
Ethical dilemmas associated with genetic testing: Which are most commonly seen and how are they managed?
N McLean, MB Delatycki, I Macciocca, RE Duncan
Genetics in Medicine | Published : 2013
DOI: 10.1038/gim.2012.138
Abstract
Purpose:The aim of this study was to document the range and frequency of ethical dilemmas associated with genetic testing encountered by genetic health professionals and to determine the strategies used to manage them.Methods:An online survey was used to document how often the 11 key ethical dilemmas have been encountered; whether any additional dilemmas have been encountered; and how these dilemmas have been managed. Members of the Australasian Association of Clinical Geneticists, Australasian Society of Genetic Counsellors, and genetic social workers practicing in Australia and New Zealand were invited to participate.Results:A total of 102 responses were received (31% response rate). Respo..
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Funding Acknowledgements
M.B.D. is supported by a Practitioner Fellowship from the National Health and Medical Research Council. R.E.D. is partly funded through the Invergowrie Foundation. This study was supported by the Operational Infrastructure Support Program of the Victorian government. This study was completed in partial fulfilment of the requirements for the Master of Genetic Counselling, University of Melbourne, Victoria, Australia.