Journal article

SURVEILLANCE OF CREUTZFELDT-JAKOB DISEASE IN AUSTRALIA: UPDATE TO DECEMBER 2011

Genevieve M Klug, Alison Boyd, Amelia McGlade, Christiane Stehmann, Marion Simpson, Colin L Masters, Steven J Collins

COMMUNICABLE DISEASES INTELLIGENCE | AUSTRALIAN GOVERNMENT, DEPT HEALTH & AGEING | Published : 2012

Abstract

The Australian National Creutzfeldt-Jakob disease Registry (ANCJDR) is a Commonwealth Government-funded surveillance unit, responsible for the ascertainment of all cases of human transmissible spongiform encephalopathy (also known as prion diseases) in Australia. Having been in operation for 18 years, the activities of the ANCJDR have evolved and expanded over this timeframe, with the ANCJDR providing clinical, diagnostic and infection control advice and service. This update provides a review of the activities of the ANCJDR during 2011 and analysis of both prospective and retrospective (to 1970) data collected from 1993 to 31 December 2011.

Grants

Funding Acknowledgements

The ANCJDR wishes to thank families, as well as medical practitioners and associated staff for their generous support of Australian CJD surveillance. The ANCJDR also thanks Dr Handan Wand, Dr Matthew Law and Professor John Kaldor (The Kirby Centre) for their expert epidemiological and statistical support.