Journal article

Why do people choose not to have screening for hemochromatosis?

M Wolthuizen, A Nisselle, J Halliday, SA Metcalfe, M Aitken, KJ Allen, MB Delatycki

Genetic Testing and Molecular Biomarkers | MARY ANN LIEBERT, INC | Published : 2013

Abstract

Aim: Hemochromatosis is a common disorder of iron overload most commonly due to homozogosity for the HFE C282Y substitution. A workplace-screening program was conducted in which over 11,000 individuals were screened for this mutation. A substudy of this project was to ascertain why people chose not to attend information and screening sessions offered in their workplace. Method: Staff were recruited by email, questionnaires in common areas, and direct approach. A purpose-designed questionnaire sought the reasons for not attending information and screening sessions. Results: The nonattender questionnaire was distributed at 24 workplaces and completed by 872 individuals. The most common reason ..

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Grants

Funding Acknowledgements

Funding for this study was provided by the Victorian Department of Human Services, the Murdoch Childrens Research Institute, the Potter Foundation, and the Victorian Government's Operational Infrastructure Support Program. K.J.A. is a Viertel Senior Medical Research Fellow; J.H. is an NMHRC Senior Research Fellow, and M.B.D. is an NHMRC Practitioner Fellow.