Receiving Enzyme Replacement Therapy for a Lysosomal Storage Disorder: A Preliminary Exploration of the Experiences of Young Patients and Their Families
R Freedman, M Sahhar, L Curnow, J Lee, H Peters
JOURNAL OF GENETIC COUNSELING | WILEY | Published : 2013
Special thanks to Alison Archibald, Jan Hodgson, Rony Duncan and Sarah Drew. This study was completed in partial fulfillment of the requirements for the Master of Genetic Counselling, University of Melbourne, Victoria, Australia and was supported by the Victorian Government's Operational Infrastructure Support Program.