Facilitating Change and Adaptation: The Experiences of Current and Bereaved Carers of Patients with Severe Chronic Obstructive Pulmonary Disease
Jennifer Philip, Michelle Gold, Caroline Brand, Belinda Miller, Jo Douglass, Vijaya Sundararajan
Journal of Palliative Medicine | MARY ANN LIEBERT, INC | Published : 2014
BACKGROUND: Patients with severe chronic obstructive pulmonary disease (COPD) experience substantial symptom burden, psychological and social morbidity. The experience of this illness has an impact beyond the patient. OBJECTIVE: This study seeks to understand the experiences and needs of family carers of people with severe COPD. DESIGN: Semistructured interviews were held with current and bereaved carers of people with severe COPD. Several areas of content were targeted in the interviews, including the experience of caring for someone with COPD, views of treatment and prognosis, information and communication needs, and the understanding of palliative care. Data were analyzed thematically. RE..View full abstract
This research project was funded by a project grant from the Bethlehem Griffiths Research Foundation. The authors wish to acknowledge the contributions of Anne Harbison and Suzanne Graham to this project.