Misperceptions of ovarian cancer risk in women at increased risk for hereditary ovarian cancer

Bettina Meiser; Melanie A Price; Phyllis N Butow; Belinda Rahman; Kathy Tucker; Benjamin Cheah; Adrian Bickerstaffe; John Hopper; Kelly-Anne Phillips

Journal article

Misperceptions of ovarian cancer risk in women at increased risk for hereditary ovarian cancer

Bettina Meiser, Melanie A Price, Phyllis N Butow, Belinda Rahman, Kathy Tucker, Benjamin Cheah, Adrian Bickerstaffe, John Hopper, Kelly-Anne Phillips

FAMILIAL CANCER | SPRINGER | Published : 2014

DOI: 10.1007/s10689-013-9687-y

Abstract

This study assessed the sociodemographic, medical and psychological predictors of accuracy of perceived risk in women at increased genetic risk for ovarian cancer. Women participating in a large cohort study who were at increased risk of ovarian and fallopian tube cancer, had no personal history of cancer and had ≥1 ovary in situ at cohort enrollment, were eligible. Women completed self-administered questionnaires and attended an interview at enrollment. Of 2,868 women unaffected with cancer at cohort enrollment, 561 were eligible. 335 women (59.8 %) overestimated their ovarian cancer risk, while 215 women (38.4 %) accurately estimated their risk, and 10 (1.8 %) underestimated it. Women who ..

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University of Melbourne Researchers

John Hopper Author Melbourne School of Population and Global Health

Kelly Phillips Author The Sir Peter Maccallum Department of Oncology

Roger Milne Author Melbourne School of Population and Global Health

Adrian Bickerstaffe Author Melbourne School of Population and Global Health

Related Projects (2)

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Grants

Awarded by Cancer Australia

Awarded by NHMRC

Awarded by National Breast Cancer Foundation

Funding Acknowledgements

We are very grateful to the many families who contribute to kConFab. We also wish to thank Heather Thorne, Eveline Niedermayr, all the kConFab research nurses and staff of the Family Cancer Clinics for their contributions to the kConFab resource. kConFab is supported by grants from the National Breast Cancer Foundation, the National Health and Medical Research Council (NHMRC), the Queensland Cancer Fund, the Cancer Councils of New South Wales, Victoria, Tasmania and South Australia, and the Cancer Foundation of Western Australia. The kConFab Follow-Up Study was funded from 2001 to 2009 by the NHMRC and currently by the National Breast Cancer Foundation and Cancer Australia No. 628333. This study was funded by NHMRC Project Grants No. 153824, 301930, 145684 and 288704, 454508. Prof Phyllis Butow receives a Principal Research Fellowship from NHMRC, Associate Professor Bettina Meiser receives a Career Development Award Level 2 from the NHMRC. Prof. Kelly-Anne Phillips is a National Breast Cancer Foundation Practitioner Fellow.